(best explanation of organ donations if you ask me!) 

Hello,

So organ donation? you've probably seen adverts about it's importance, heard people talk about it or even may have been affected by it in some shape or another.

Understanding the importance of organ donation came to me in quite an odd way. Back in 2011 (or 2012) I found Emma Jane Kingston 's Bebo or was it her initial Tumblr? (I can't remember) and I was drawn to her infectious, happy, go get them personality and instantly started to have regular conversations with her. We spoke about boys, similar programmes we had watched and the general chat about life. At first her condition didn't strike me or give me a reason to talk to her, I didn't find out for a while to me she was like every other girl our age and she had the ability to make time for anybody who she came into contact. Emma in fact had Cystic Fibrosis, a life-shortening inherited disease which affects over 10,000 people in the UK. At the moment there isn't a cure for Cystic Fibrosis but there is many treatments available to manage it for the time being. However a double lung transplant is essiential for them to have any kind of 'normal' life.

Each week five babies are born with cystic fibrosis, and two people die

If anything Emma introduced me to this condition and I started to watch her regular YouTube videos which educated me more than research papers, news reports ever could about the condition and the real importance of being a organ donor. Read more about Cystic Fibrosis over on the Cystic Fibrosis Trust site, http://www.cysticfibrosis.org.uk/. I think it's far more effective to hear someone so young and involved talk about their condition with an ability to just shift our perspectives on a huge scale through places like YouTube.There are so many reasons why we should talk about transplantation so much more than we already do, it's important to pass that information on to our next generation along with our friends and families.  

(one of Emma's youtube videos about the condition please watch!)

Sadly Emma passed away on July 8th 2013.

I miss her, it's been over 2 years now and I can't quite believe it's been that long without her. I'm gutted we never met in the flesh, ever shared a night of cocktails and before receiving a new set of lungs to better her chances of a longer life. I miss having the conversations we shared and her general being to support anybody who needed it. Emma never made anybody feel alone or unloved. If somebody deserves to still be here, promoting the importance of organ donation or to spring on some wonderfulness into the world then it has to be Emma Jane Kingston. I miss the witty, infectious personality on Tumblr and on YouTube. Actually it was days before her decline that we had spoken about organ donation and how she wanted to promote it so much further after doing a local Radio and TV interview. That footage still brings me to tears, it all happened too quickly. 


It makes me angry that 18 people die everyday waiting for a transplant.

1 organ donor can save 8 lives and change the lives of more than 50 people.  

Surely those scary statistics are enough to make you want to sign the register? 

 I talk to people who wouldn't even consider being a organ donor and it's those I ask why? 


When you die you won't need your organs wherever we go next and there's so many lives that could be saved by you signing up and signing your organs to somebody who waiting for something to change their life forever. Imagine being the hero of somebody who has Cystic Fibrosis or somebody with a heart condition, that could be you. So sign up.



I still have friends around me who suffer with the same condition, are awaiting new lungs or DO have new lungs. There's so much we can all do by passing on the word and importance.. 

'Hope for More' is a really interesting report into Cystic Fibrosis and lungs transplantation, check it out on the Cystic Fibrosis Trust website. There is also a programme on BBC at the moment called Transplant Tales which gives you a great insight into organ donation, definitely check it out.

Written in loving memory of Emma Jane Kingston,

1992-2013 


'There is a light and it never goes out'


p.s if you want to be a organ donor head over to the NHS Organ Donor Register website.

thanks for reading,